Shaping Tomorrow Together is a one-of-a-kind meeting where people with MS can share their voice and experiences to help shape future MS treatments. The FDA, which regulates and approves treatments, and other stakeholders value hearing directly from people with MS and their family members.
The survey provides a way to hear in depth from many people with MS across the United States. The survey collects information about symptoms, impacts on daily life and how individuals are managing their MS with medical and supportive treatment approaches. Robust survey responses will better inform outcomes and recommendations from the initiative.
Thanks to the MS Coalition members for supporting the initiative in distributing information and the survey to people with MS.
Important Dates and Roles for MS Coalition Members
Webinar to learn about the initiative and how people with MS can participate
Coalition Members can:
- Share MS Society social and other info about the webinar
- Share registration link/information: https://nmss.zoom.us/webinar/register/WN_hHdHhEE3TBmPJ2glcgME0Q
- Register to learn more
Survey is open.
Coalition Members can:
- Share info about the survey
- Direct people to the Shaping Tomorrow Together Website
Registration open for hybrid meeting. People will be able to register for virtual component of meeting
Coalition Members can:
- Share info about the meeting and registration info
Meeting takes place
Coalition Members can:
- Join meeting virtually
Voice of the Patient Report Published
Coalition Members can:
- Share info about the published report
MS Coalition Member Organizations will be listed as Collaborating Organizations for the meeting and the report. Accelerated Cure Project is a partner organization for their work leading the survey development and analysis.
